Dajanel

I’m Joni Robinson mother of Toni Alford who was born with a large hole in her heart and had an asd repair at the age of 9 months.. is non verbal & mentally delayed and at 12 years old still has no actual diagnosis ..

I’m bragging for her for her big sister.. my oldest daughter Dajanel who is Toni’s best friend . I don’t know what we would do without her.. she takes such good care of her sister and also tries to take her with her every where she goes like Toni’s her age which is 19.. but I’m bragging because this experience with her sister has made her want to be a special needs teacher and is now in her second year of college taking the required courses to become the best teacher and helper for her sister.

Nixon

Nixon

Nixon is always hugging and kisses his older Shane who has CP.

They are 3 years apart. Nixon is kind and proud of Shane. Shane was Nixon’s first word and even took his steps to him. He is always so eager to introduce his brother Shane to everyone.

Nixon says “he’s my Shane” I’m so in awe of their bond. It’s so much deeper than I could have ever hoped for.

Special Needs Sibling – April

April is kind, loving, helpful, and gentle kid. She has two older siblings with special needs: Jackie and Jared are twins with special needs. She is always there to step in to help Jackie. She will get Jackie dressed, her brushed and breakfast ready when mom or dad can’t do it. Sometimes people think she is either older than Jared and Jackie or she is their triplet. ?

And April is one of 5 kids, so she really is an awesome kid!!!!

Special Needs Sibling: Andy

Special Needs Sibling: Andy

Andy is our sister, she survived an aneurysm at age 14 and forever changed our lives. She impacted all of us in different ways, but I will speak for myself as the older sister. I had to grow up very fast and I learned how to become a caregiver at age 16. We have faced many challenges together as a family, but we are blessed that she is still here with us.

She makes us proud every day, she is resilient and works so hard to reach many milestones as little as being able to walk a couple of feet by herself using a walker. Andy is the most sweet and positive person, she makes us smile even on the toughest days, she really makes us realize how blessed we are. Sometimes I feel sad that she has not been able to experience all the things I have been able to experience, but she drives me to be the best person I can be so that I can make her proud. Being a sibling has been challenging and it can be lonely, but it also makes you tough. My love goes out to all those siblings out there!

Special Needs Sibling: Jayla

Jayla is 8 years old and the middle child of 5 children. Both of her brothers have Autism Jayden is 13 yrs old and Jayceon is 6 yrs old.

Jayla is very smart and attends a gifted school “Sara M.Gilmore Academy” she is in 3rd grade now. Last year Jayla and her little sister Jaylani (7yrs old) are extremely understanding of their brothers and the challenges that come from both of their brothers being on the spectrum. Last year, Jayla had spoken to a few friends about her brothers and their struggles. One day while in Media Center she chose a book about a boy with special needs. A classmate asked her why she chose that book and Jayla replied “both of my brothers have autism remember?” To Jayla’s surprise her classmate said “Eww they’re weird and dumb.” Jayla can home distraught crying how it was her worst day of school ever. Now this is a child that cries during summer break because school is over and she will not be receiving any more homework. She began to tell me what happened on the way home. Instantly, my heart was shattered for Jayla and myself and most importantly for my boys.

After all these years they’re still being mocked and ridiculed for a disability they have no control over and have never wanted. So I asked Jayla, well Jayla what do you think we should do? Jayla’s reply was “we need to teach her about autism so she won’t be scared of any kids like they boys who have it.” I was impressed but most importantly bursting with pride. She didn’t even want to get her classmate in trouble she wanted to educate her. She asked me if I can speak with her schools counselor Mrs. Torres to ask if she would be able to bring in a book I have read to all of my kids about autism “My Brother Charlie.” Mrs. Torres loved the idea and Jayla was able to read it to her both 2nd grade classes. Then Mrs. Perez (her schools principal) got wind of it all and called me in to commend me on Jayla handling the matter in such a mature fashion and wanting to educate the other students. Mrs. Perez asked Jayla if she would like to read the story to grade 1-4 in the auditorium. Jayla obliged and although she has stage fright she faced her fears and practiced at home and read the story with her principal beside her. Her principal who also has a son on the spectrum so this was a matter that hit her close to home as well. She got choked up a bit and took a minute to get herself together but all in all I’m so proud. Proud I raised such a wonderful and thoughtful little girl who thinks of everyone’s needs before her own. Who rather educate her peers rather then get them in trouble. Who at the age of 7 stood up for her brothers and faced her fears to make sure her brothers will be understood but most importantly accepted.

This is what makes my Jayla a “Special Needs Sibling!”