Ava’s sister has a rare disease DHX-30! So rare the first symposium about it is in 3 weeks in Sept. I am going to have Ava fill this out……
I have been invited as a public speaker to attend and speak about sibling issues…. I was bullied my whole life, but I was also bullied about my sister! When that happened, I had enough! I was bullied on social media and I screen shot it, and started my own “awareness group” called Ava’s Advocacy Army!
The Army gained a lot of attention and I earned a Civic responsibility award….
(After that I was asked to speak at the first symposium)
My sister is my best friend! I don’t feel like I have it hard because my sister is special…. life can just be hard…. seeing her sick, and when life gets scary! That’s when it’s hard…..